Thursday, May 17, 2012
Update on Marleigh
After meeting with the pediatrian she sent a referral to Kingston (where we were sent with Jackson). After getting home and thinking about it I realized I did not want to go there again. I don't trust them, I don't think I recieved the care my son deserved and I am still upset that they gave me such a hard time getting his final report. Which by the way we just received...so that is over 2 years after he died. Something inside of me said call and ask to be sent to Sick Kids in Toronto. After Jackson died I promised myself that I would demand the proper care for my children if it ever had to come up (although I had hoped it would never come up). On Friday of last week I called the Dr. office and asked that they send a referral to Sick Kids. They called back and told me that sometimes it can take 6 months to a year, and sometimes they can reject the referral. That was ok but at least I tried. Well yesterday Sick Kids called us and we have an appointment in 3 weeks. After the call I was so thankful that we or were able to get in, then my worry brain thought but why did they get us in so fast. My sister (who is a pediatric nurse practitioner) told me that it is a normal time frame for a children's hospital to get back to patients. I am anxious about the time frame but am so glad that we are going there. I know in my heart that they will make my nerves better and that she is in going to the best possible hospital for whatever the outcome is. I hope that this visit brings me peace of mind and maybe I can scale back my worrying.